Normal white blood cell count - 4500 to 10,000
Normal Platelet count - 150,000 to 400,000
Don was diagnosed with Hep C genotype 1 late in 2008. He started treatment in January 2009 - completing it in Dec. 2009. He has cirrhosis and varices (like varacose veins in the throat - caused by liver not being able to filter the blood fast enough and it backs up causing pressure on the veins.. it is very dangerous if they rupture). After 3 months of treatment his WBC and Platelets dropped drastically.. he was given injections to get his WBC back up..but his platelets were dangerously low.. (lower 30,000 range) His interferon injections were cut in half and then he was referred to a liver transplant specialist.
The new doc - put him back on full interferon injections telling us that unless Don's Platelet counts were dipping in the low 20,000's he was comfortable being more aggressive with the treatment. The next appt, Dons Hep count was 30,000+ and the next time he was clear..but he was now past the 6 month mark. He was treated for 12 months total.
He was still clear in March for his 3 month test...and he looked amazing... bright white eyes and his strength returned.. At about the 5 month mark though his urine was sometimes very dark. That was the only indication something was not right . He still felt wonderful and his eyes were still clear.
Our appointment yesterday sadly revealed that he has had a relapse. Our treatment choices are:
1. resume old treatment.. this time for 18 months. (1 interferon shot per week with 14 daily pills.
2. more aggressive treatment of 7 shots per week..not sure about the pills.
3. being entered into a trial med test where some get the test drug and others get a placebo..and you don't know what you are getting..
4. do nothing and wait for "future meds" to be released...but in the time we have dealt with this ..I keep hearing the same old thing... 2 more years for these new meds...but that is what I heard 2 years ago.
Yesterday - I did what all big girls do facing something like this... I cried my eyes out... I slept for 5 hours during the day .. I ate an ENTIRE box of chocolate chip cookies ..and then I got up and started to do more research. I will fight for Don until my last breath...standing over him like a mad dog if I have to....
Please leave a comment .. Don asks me every once in a while about it and it is fun to read him the responses..