Yesterday was disappointing to say the least! First we were literally forgotten about in the examining room and waited for an hour. I then pretended to have to go to the bathroom .. so I could really have a reason to wander the hall and ask about this... When the doctor did come in, we found out that the woman who is heading the experimental drug trials had called in sick and I felt like the doctor was ill advised about our progress. After we caught him up on the facts and told him we were already signed up for the test drugs... he told us that we needed to have the Hepatologist fax him a statement showing Don was negative for Lupus. This was required for the drug study Don is about to enter.
Later this week, they will contact us with further details about the new drugs and Don (along with the whole group) is going to start them in mid-March.
Please please please keep Don in your prayers. There is no secret that these experimental drugs are usually harder on the body than the previous chemotherapy he was on for 12 months. The good news is that he will only take these for 6 months. Don feels as if he is looking straight up the side of a cliff. The owner of his work place is totally unsympathetic and I do not even mind using the word CRUEL. God is above all of this and I am asking for prayers to just magnify the situation!!!
I love you all so much for all of your support. We could not do this alone... either without the Lord or our friends and family!!!