Yesterday was disappointing to say the least! First we were literally forgotten about in the examining room and waited for an hour. I then pretended to have to go to the bathroom .. so I could really have a reason to wander the hall and ask about this... When the doctor did come in, we found out that the woman who is heading the experimental drug trials had called in sick and I felt like the doctor was ill advised about our progress. After we caught him up on the facts and told him we were already signed up for the test drugs... he told us that we needed to have the Hepatologist fax him a statement showing Don was negative for Lupus. This was required for the drug study Don is about to enter.
Later this week, they will contact us with further details about the new drugs and Don (along with the whole group) is going to start them in mid-March.
Please please please keep Don in your prayers. There is no secret that these experimental drugs are usually harder on the body than the previous chemotherapy he was on for 12 months. The good news is that he will only take these for 6 months. Don feels as if he is looking straight up the side of a cliff. The owner of his work place is totally unsympathetic and I do not even mind using the word CRUEL. God is above all of this and I am asking for prayers to just magnify the situation!!!
I love you all so much for all of your support. We could not do this alone... either without the Lord or our friends and family!!!
4 comments:
Gosh I am so sorry you are going through this. Don is in my prayers, I really hope these experimental drugs are what he needs to get him back on his feet.
blessings to you both..
xoxo
Tell Don that God will show him the toeholds and fingertip grips he needs to get up that wall; but as in real climbing it comes one movement at a time...
Keeping you in prayers, always!
I am praying so hard for you and Don. Like us, every bit of good news ( his fewer bandings) is followed by something less fortunate. We'll both get there, step by step. Can't keep a good man down. His employer has obviously never had health issues...how dare he be cruel!!!!
hopefully all this will be over for him and he will feel much better. I have a virus and i'm complaining. I can't imagine how Don must suffer. thank God there are experimental drugs to keep trying!! i hope his is feeling better very very soon.
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